I Have Chronic Lyme Disease
I, Henrik Jeppesen was in 2019 hit by severe daily headaches and jaw pain. I visited over 40 specialists over the next 3 years and spent approx. 200,000 kroner, but nothing helped. I gradually got worse and new terrible symptoms. Among other things, I came at the psychiatric emergency room because I was feeling terrible, but just like at my own doctor, they suggested anxiety medication (with a high risk of addiction), but I refused because I was convinced it would not be a solution to the terrible pain and discomfort. I desperately created LivetTilbage.dk and wrote several Facebook posts. One person mentioned that she had read my website and asked if anyone had thought of borrelia.
I was tested and was admitted to Odense where I have received two diagnoses. Borrelia and Borrelia arthritis (Borrelia arthritis). I was told that my numbers are towering and that they have found Lyme disease in the brain and synovial fluid. Chronic Lyme disease is difficult to treat and I am now trying to get as much help as I can in Denmark, while I plan to have to go abroad because the antibiotic treatment I have received in Denmark has not made the pain less. Every day is a struggle to increase the chance that I can have a good life again. In other words, to get life back.
I am saddened by the lack of knowledge about Lyme disease, not only in Denmark, but all over the world. It is sad that none of the over 40 specialists could suggest Lyme disease when coming with major jaw pain and headaches. This website is made both to try to help myself increase the chance of having a good life, but also to create more awareness around borrelia. It may not move much, but the borrelia disease needs all the attention it can get, so that as few suffer as possible, as many as possible can get help, and the treatment options can be improved.
SYMPTOMS
From most awful to least awful:
Jaw pain
Approx. 80 percent on the left, 20 percent on the right. Often very intense and it fluctuates a lot how the pain feels. Often pulls out so there is facial pain at the same time. Have often laid with a heating pad and breathed deeply with guided meditation when it has been worst.
2. Headache
Often very intense headache where the pain is felt differently. Most often most pain in the left part of the head. Have often laid with a heating pad and breathed deeply with guided meditation when it has been worst.
3. Vision / brain problem
Probably this problem. “This is not a defect in the eye itself. The problem is rather that the brain has trouble processing the signals the eyes send to it. It is a neurological impairment.”
4. Essential tremor (tremor)
This is a problem in several places in the body, but it comes and goes. However, very often in the legs and feet when I lie down. Worst when it’s in your head. Link to Sundhed.dk.
5. Low back pain
Came after spinal cord test (lumbar puncture). Whether that is the current cause, I do not know.
6. Borrelia arthritis and cracking sounds in kneecaps
Can not walk normally.
7. Crackling sounds in various places in the body
From time to another. It is not pleasant, but not a big problem compared to the other symptoms.
STATUS
Treatment with antibiotics in Denmark has not improved. Continued violent daily symptoms despite the antibiotic regimen for a month, supplements, exercise, exercises, meditation, sauna, extremely healthy diet and good sleep. Trying to make a big effort every day, but at the moment. no reward. Update: Will stop using antibiotics from 3 July due to a new spinal cord test, but may start up again afterwards.
MY PLAN
1. Help in Denmark
Get as much help as I can in Denmark in the form of tests, tests, pain clinic (including LDN), and other help. Work is based on evidence-based treatment and when there is nothing that will certainly work against borrelia, if the infection is beaten down according to them, I can not get more treatment than the month with antibiotics they gave me, but which has not improved my life. It is a global problem with a lack of treatment for chronically ill people with Lyme disease, and I would say that infection medicine in Odense has treated me with respect and I understand that they just follow guidelines. I wish I could receive experimental treatment that has helped many, but at the moment. it is not an option through the public sector in Denmark, unfortunately. They will follow me for at least a year in Odense.
2. Self help
Healthy diet (Paleo diet), good sleep, exercise, exercises, sauna, meditation, supplements, herbs, CBD oil, LDN medication, and try to avoid overload and stress. Can be hard with so much pain and discomfort, but I try.
3. Experiment with experimental treatment abroad
There are some that can be tried, but the prices are high and I have limited funds. Self-help may reduce symptoms over time, but the plan is additional treatments in addition to self-help.
DIAGNOSES AND ASSESSMENTS
1. DA692D Borrelia polyradiculitis.
2. DM012 Arthritis in borrelia disease.
Barbesia co-infection (ArminLabs test, but tested negative in Denmark)
4. Bartonella co-infection (ArminLabs test, but tested negative in Denmark)
5. Mycoplasma (ArminLabs test)
6. Yersinia (ArminLabs test)
Diagnoses from dentists can be seen further down.
“We have detected chronic borrelia infection with a symptom duration of almost 3 years. Signs of clear borrelia arthritis have been found in the right knee joint, which is currently both positive in the intrasynovialis test for borrelia, but also clearly positive in borrelia PCR from the synovial fluid. Subsequently, he has had a lumbar puncture, which shows a slight pleocytosis of 9 cells and at the same time a CXCL13 of over 500, which indicates that the infection has also affected the central nervous system. and borrelia PCR from the spinal fluid.
Investigations will be made regarding. genotyping from the already positive findings. Currently, the plan is thus to treat his borrelia arthritis in depth and that is, he should have 28 days of antibiotic treatment. Explains the rationale for switching to Doxycycline beh. currently. I agree with this. “Sigurdur Skarphedinsson, Chief Physician, OUH Infektionsmedicinsk Amb. (Odense).
Other diagnoses. These from bite function specialist, Morten Worsøe:
Anterior disc displacement affecting the retrodiscal tissue.
2. Cehpalgia arthrohenica.
3. Myoresica facial dolores.
It is uncertain whether these diagnoses are due to Lyme disease. Bite splint treatment has not helped the symptoms.
This from dentist, Per Stylvig
Osteoarthritis of the jaw joints. Note: Very questionable diagnosis. Several dentists subsequently disagreed with this diagnosis / assessment. Scanning did not show signs of osteoarthritis according to expert, Hanne Hintze
TESTS
ArminLabs, German laboratory: Positive for borrelia, babesia, bartonella, mycoplasma and yersinia.Gabinet analityki Medycznej, Polish laboratory: Tested for babesia and bartonella, both positive but negative in Denmark – English translation. Miscellaneous Danish test: Positive for borrelia and borrelia arthritis , negative on babesia and bartonella.
TIMELINE
2014: Very ill in the Andaman Islands
I ate a fish curry in the Andaman Islands and became very ill. My body was very weak and I had some of the worst days of my life. Arrived at hospital in Chennai, India and was able to travel home after a few days but had problems with the body, including some form of breathing problems, for several months after. Should have nothing to do with Lyme disease, but belong to the medical history.
2015: Bitten by millipedes in Fiji
I was bitten by a millipede in Fiji back in 2015, but am told that it is not necessary to see a doctor. After thorough research, it does not suggest this bite may have caused borrelia, but mentions it as part of the medical history.
2018: Very sick in Asia and Hawaii
I get very sick in the Maldives, in Malaysia and in Hawaii. The worst was at an airport in Malaysia where my body gradually got worse and worse until I got in a wheelchair. I got an injection from an airport doctor and got into a bed. I experienced improvement the next day and chose to travel on. It was probably caused by a food poisoning. A few weeks later there were again violent symptoms where my body was very weak in Hawaii. Hard to explain, other than a probable food poisoning, or could it be an infection in outbreak?
2019: The terrible jaw pain and headaches started
I started to feel a little discomfort in the ear at the beginning of the year, but only after some stressful situations did the jaws and head start to hurt insanely. Among other things, I started on the medicine tramadol. I visited many specialists, including several dentists specializing in bite function. Dentist Per Stylvig said I had osteoarthritis in my jaw joints, but several dentists disagreed.
I went to a number of other experts such as. osteopaths and acupuncturists, but nothing helped. I had a bite splint made at the end of the year by bite function’s expert, Karin Fejerskov with approx. 50 years of experience, and was advised to relax. I did that for a long time, but it was no solution.
2020: Covid came – continued bite splint treatment
I sought out new specialists, i.a. a Brazilian expert who thought I should have a different type of bite splint. Corona came and I chose to continue with the bite splint from Karin Fejerskov, but during the period also sought out other alternative therapists, but everything was without effect.
2021: The Covid Vaccine: Good or Bad Decision?
I took the covid vaccine and a number of new symptoms came shortly after. In addition to jaw pain and headaches, there was now also Essential tremor (shaking) and general weakness in the body. A marked deterioration of an already very hard life. Before this I had an MRI scan. A Brazilian expert believed that a high bite splint had to be made due to bones being too close to each other according to the MRI scan. It was made but did not improve. Maybe it was a good decision to take the vaccine as the new symptoms might have made one wrote borrelia to me in 2022. As far as I can understand it was an impact on my immune system that made the new symptoms come.
2022: Total Desperation – Creating this website
From the beginning of the year I got gradually worse and worse and go into total desperation due to violent symptoms, where especially essential tremor (shaking) was very violent. I came to the psychiatric emergency room where they will not admit me because I refused to take the medicine Lyrica. Bite function specialist, Morten Worsøe gave me three diagnoses (Anterior disc displacement with influence on the retrodiscal tissue, Cehpalgia arthrohenica and Dolores facialis myogenica.), And I am currently underway with various bite splint treatment that so far has not made the pain less.
I desperately created LivetTilbage.dk and wrote several Facebook posts. One person mentioned that she had read my website and asked if anyone had thought of borrelia.
I was tested and was admitted to Odense where I have received two diagnoses. Borrelia and Borrelia arthritis (Borrelia arthritis). I was told that my numbers are towering and that they have found Lyme disease in the brain and synovial fluid.
Chronic Lyme disease is difficult to treat and I am now trying to get as much help as I can in Denmark, while I plan to go abroad for experimental treatment because the antibiotic treatment I have received in Denmark has not made the pain less. Every day is a struggle to increase the chance that I can have a good life again.
WHY THIS WEBSITE?
1. It did I found out I have Lyme disease. Something none of the over 40 specialists came up with.
Easy overview for myself, current and future therapists.
Increase the chance of getting the best possible help to have the greatest possible chance of having a good life again.
4. Create more awareness around Lyme disease. The more the better. Less risk for others goes to over 40 specialists without anyone mentioning Lyme disease as a possible cause.
5. Share information for potential benefit to the chronically ill. Eg. good advice and things I have learned over time.
6. Help others.
DO YOU WANT TO HELP?
You can support me for free by using my affiliate links, but there are several ways to help my project get back to life:
Donation
Or MobilePay 93941988. I have large debt after visiting over 40 specialists and there are many expenses with this disease. Every contribution, even a penny, can help.
Treatment or test
In Denmark, symptoms after the antibiotic regimen are perceived as late effects among doctors. If you are a therapist and think you can help I would love to hear from you.
Link to EveryCountryInTheWorld.com: $ 200
I own the website EveryCountryInTheWorld.com with a domain authority of 51. A link to your website can be purchased on this website for 200 kroner and thus contribute to a better domain authority for your website. You can contact me if interested.
Links
If you have a website, links to my websites livettilbage.dk and lyme.blog can ensure me a better domain authority which can help the project to try to have a good life again.
Quiet place to stay
A quiet place to live will be optimal when I treat in Denmark. Can you help?